Singing allows people with Parkinson’s disease to exercise their vocal cords – The Washington Post

A great article by Phyllis Richman about her experiences in the Parkinson Foundation of the National Capital Area’s choir, exercise and dance classes!

Singing allows people with Parkinson’s disease to exercise their vocal cords – The Washington Post.

And in case you didn’t see it, Karl had a chance to ask Davis Phinney some questions about living with Parkinson’s.  Here’s a link to that interview.

January 9th Meeting cancelled

Tonight’s meeting is cancelled due to the weather.  The temp is going to drop and we could have some freezing roads.  Stay home and be safe!

Angela and Karl

 

Notes from September Fairfax City PD support group meeting

Here’s a listing of links and info from the September Fairfax City PD Support group meeting.  There’s lots of information so, please scroll the entire email.

Please note this information is not a replacement for medical diagnosis or treatment.  These are simply informational links.  Always be sure to check with your doctor.

 Moving Day October 16th – 8:30am – 12pm
Welcome to Team Zimmet!!!!  Less than 2 weeks to go before the exciting event.  Our Team is now by far in first place with the number of walkers/participants signed up so far.  We have close to 70, which is more than triple the next closest team.  Additionally, we are now in 3rd place in fund raising with $7,870 raised out of the close to $200,000 raised so far (www.parkinsonfoundation.org  and click moving day logo go to Team Zimmet).

Let’s try and get more money and more participants. Remember you don’t have to give or raise money to attend and you do not have to walk.  The more support we have the better!  Spread the word!  Feel free in contacting us with any questions and/or concerns.

We will be in touch with more Team Zimmet details.
Mary Beth and Paul

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Southeastern Parkinson Disease Conference – October 14-16

http://gaparkinsons.org/2011SPDC_Home.htm

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PD Community Education Day – October 22nd – Sheraton Richmond Park South Hotel – Richmond VA

http://events.r20.constantcontact.com/register/event?llr=kmqoyagab&oeidk=a07e48ikidl794701df

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PDCP Support Group – October 30 – Reston Regional Library
We PD CarePartners Need To Take Care Of Ourselves. So We Can Be There For The People We Care About.
Our next PDCP Gathering is on  Sunday, October 30, 2011 from  1:30 PM to 4 PM. at the Reston Regional Library
19925 Bowman Towne Drive, Reston VA. (Ph.#: (703) 689-2700) Please note change of location

The topic is Home Care Assistance: Alexis Press will talk about how to make living with Parkinson’s disease easier at home…..Learn more about how caregivers from Home Care Assistance can enhance the quality of life for those with PD while also providing respite for the family.
Refreshments will be served. We would like to get a head count of PDCPs who are hoping to attend . Please contact Sheila at steelg22015@yahoo.com by October 28.

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Martinsburg WV – Parkinson’s Disease & Your Health Symposium – November 12, 8am-3pm

See attached PDF for the brochure for this event

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Ceregene vector study – clinical trial – http://www.ceregene.com/parkinsons.asp

PD Trials.org – website to view clinical trials info in Parkinson’s – www.pdtrials.org

Michael J Fox Foundation’s Trial Finder – http://www.michaeljfox.org/foxtrialfinder.cfm

23 and Me – Genetic study company giving free genetic testing for those with Parkinson’s – https://www.23andme.com/pd/

Aspartame and Parkinson’s studies – http://www.ncbi.nlm.nih.gov/pubmed/8451009

http://www.livestrong.com/article/518482-aspartame-parkinsons/

Patientslikeme – an active Parkinson’s community site online – http://www.patientslikeme.com/conditions/4-parkinson-s-disease

PLWP2 – People living with Parkinson’s – an active online Parkinson’s community site – http://health.groups.yahoo.com/group/plwp2/

NWPF – Northwest Parkinson’s Foundation – organization that has online resources and a printed newsletter – anyone can sign up for either weekly news summary via email or printed bi-monthly newsletter – http://www.nwpf.org/

PD Talk Live – online radio show led by someone living with Parkinson’s – http://www.blogtalkradio.com/pdtalklive

Caregivers are really essential  (CARE) – Caregiver’s listserv – http://www.pdf.org/en/resourcelink/view/resource/657

Deep Brain Stimulation Information Sessions – Johns Hopkins – December 5, 2011 – see attached flyer

Parkinson Foundation of the National Capital Area (PFNCA) Lecture Series
- http://www.parkinsonfoundation.org/programs/cls/index.html
The Virginia Community Lecture Series – The Virginia lecture is held the second Wednesday of every month at the Epiphany Byzantine Church. Doors open at 6:30 pm and the program begins at 7 pm. 3410 Woodburn Road Annandale VA 22003 For specific dates, speakers and their topics, please see below:

October 12, 2011
Dr. Fernando Pagan
Topic: He will be answering guests’ questions on PD

November 9, 2011
Judy Cooper
Topic: Exercise and PD

The Maryland Community Lecture Series -The Maryland Community Lecture Series, also known as the MD/DC Parkinson Network, is held the third Tuesday every month at St. Mark Presbyterian Church. Doors open at 7 pm and the program begins at 7:30 pm. 10701 Old Georgetown Road North Bethesda MD 20852. For specific dates, speakers and their topics, please see below:

October 18, 2011
Dr. Farzin Farid, Pharm D.
Topic: Nutrition and PD

November 15, 2011
Lisa Ebb, PT, MS, NCS
Topic: Exercise and PD

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David Phinney Foundation – Living Well Challenge webinar

The Living Well Challege webinar is a bi-monthly educational series featuring movement disorder experts on topics of interest to people affected by Parkinson’s disease.  Ready to “take the challenge?” Start by asking your support group to build a meeting around the Living Well Challenge. We’ve made group viewing easy by making the webinar available “on demand” via our website. You can view it anytime, anywhere it’s convenient.

Then, be engaged. This month’s webisode features Dr. Holly Shill of Banner Sun Health Research Institute, walking you through the current Parkinson’s research landscape and offering her insight into what these studies mean for people affected by Parkinson’s today. Watch the webisode with your support group – or with family and friends at home – and talk about what it means to you. How can you benefit from this research? How can you be informed and be aware to help you live well today? What kind of research would you like to see? Have you or someone you know participated in a Parkinson’s study?

Visit the Davis Phinney Foundation website to register for this free webinar series. We’ve streamlined the process, so once you’ve created your personal login and password, you can access new and archived webisodes anytime you like.

FDA Warns of Parkinson’s Medication Error – Parkinson’s Disease Foundation PDF

 

 

A warning from the FDA about ropinirole/Requip -

FDA Warns of Parkinson’s Medication Error – Parkinson’s Disease Foundation PDF.

The Parkinson’s Doctor Will Video Chat With You Now : NPR

Great article that discusses a new technology innovation that we have mentioned in our support group.  Dr Dorsey is doing some wonderful work at Johns Hopkins.

The Parkinson’s Doctor Will Video Chat With You Now : NPR.

Also – Our Fairfax City PD Support group picnic will be on Sunday July 24th from 5-8pm at the home of MaryBeth and Doug.

Click here to download the info flyer and directions.

Hope you can join us!

Upcoming online PD events

If you have time in the next couple of weeks, you may want to consider attending the following online/phone events:

June 15th – Davis Phinney Foundation – Living Well Challenge:A Victory Summit Panel Discussion Webinaron How to Live Well with Parkinson’s
June 15, 2011 – 1:00pm EST
REGISTER FOR THE LIVING WELL CHALLENGE

June 28th – 1pm – Parkinson Disease Foundation- Complementary Approaches to Parkinson’s – Parkinson’s Disease Foundation (PDF).

New insights into Parkinson’s Disease

More interesting PD research summary – New insights into Parkinson’s Disease.

Answers for Deprivation of Smell and Taste – NYTimes.com

Received this article today and thought some of our SG members would be interested.

Answers for Deprivation of Smell and Taste – NYTimes.com.

Angela

Article – Stanford scientists build Parkinson’s disease in a dish with cells from Google founder’s mom – San Jose Mercury News

Just in case any of you didn’t see this article:

Stanford scientists build Parkinson’s disease in a dish with cells from Google founder’s mom – San Jose Mercury News.

Have a great weekend!
Angela

Reiki for Parkinson’s workshop May 7th 2011

Reiki for Parkinson’s workshop – for those living with Parkinson’s disease (PD), PD carepartners/caregivers, family or friends.

May 7th 2011
9:30am – 4:30pm
Burke Centre Library, Burke VA

There is no charge for this workshop.  There are only 20 slots available so, please register soon. Please register by emailing therobbs@cox.net or Karl or give us a call at 703-277-9666.

Click here to download the Reiki for PD flyer – Powered by Google Docs