Dance reminder, March cafes, & a new kind of support group!

March 5, 2019

Exciting news and update on local Parkinson’s events via the Parkinson Social Network!

Parkinson Social Network

Dance for PD® news
Dance for PDEarlier in February we announced that Dance for PD® is coming to town, and I wanted to let you know that there are still spaces available. It’s a free class, and lots of fun, so I hope if you’ve been hesitating you’ll reconsider and check it out tomorrow. No dance experience is required for this movement class for Parkinson people and their families, friends, and care partners. Led by teaching artists from the Mark Morris Dance Group, you’ll explore movement and music in a non-pressured, social environment.
You can register online at
or by phone at 1-800-957-1046, ext. 5.

Latest Dance for PD® streamed class is now online
Anyone can join these classes from the comfort of their home! This particular class is taught by Pamela Quinn. Click here to view and participate in Pamela’s class. There’s a new class available every month, usually…

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Till death do us part in dealing with chronic illness such as Parkinson’s disease…By Dr. De Leon

August 21, 2018

Sharing this recent posting from Dr. De Leon about relationships and chronic illness. #ParkinsonsAwareness #chronicillness


“There is simply no medicine that will cure what happiness can’t cure.”
~ Gabriel Garcia Marquez

In a time when marriages end faster than we can say “I do” how to make a marriage work in the midst of living with a chronic illness is no easy feat.
Establishing a balance with your partner can be a daunting task. After living with a chronic illness for more than ½ of our marriage, I have learned a few tricks to make things work better and keep the flame going. This requires a great deal of love, patience, forgiveness, and mutual respect.
We must think first of marriage and romantic relationships as an empty treasure chest. Here we put for safe keeping all our goals, dreams, desires, expectations and most prized possessions that speak of our past and our future. But, we can only draw from it what we have made a…

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Mushrooms, Elephants, Young at Art, and a New PD Movement Study

August 10, 2018

It’s been a while since we shared any news but thought you might be interested in this Parkinson Social Network newsletter/update!

Parkinson Social Network

Sorry about the this week’s title, but I really couldn’t figure out how to tie it all in together in a few words! I hope you find something of interest to you, or someone you know.

Cafe McLean
We heard about some very interesting collections at our cafe on Wednesday, namely – mushrooms and elephants! Our mushroom collector collects mushroom shaped jewelry but was also knowledgeable about the different kinds of mushrooms, and has even traveled to Europe to hunt for mushrooms with other enthusiasts. It was fun learning so much about them, particularly as we’ve had 4 different kinds growing in our backyard this summer. The photo above is of one kind – almost the size of dinner plates.

Our elephant collector brought several of her favorites, each with it’s own story, which led to stories from a couple of our friends about their rides on elephants. I’m looking…

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A Farewell to Ali

June 5, 2016

Sharing Karl’s thoughts on the passing of Muhammad Ali.

A Soft Voice In A Noisy World

He is an will be missed! He is and will be missed!

I never met the man but just knowing that he was there meant something. He meant so much to so many in countless genres. He fought the ultimate fight with a quiet grace after making lasting marks  that thus changed and broke open multiple conversations that would span the globe.

His body may have moved on but his presence and impact will live as long as humankind continues to exist. He fought a long battle with an opponent that plays by no rules. Unlike boxing, with illness there is no telling when to block or duck from such a blow. His path and fame has opened many doors and paved many roads that have helped to shed light on the importance and expediency of the need to aid those trying to navigate Parkinson’s disease.  We have lost a great friend to our community and a…

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10 Observations For People With Parkinson’s To Consider

October 13, 2015

Karl posted today a blog posting today that I thought the followers of this blog may want to read.  Here’s the link to that blog posting:

Source: 10 Observations For People With Parkinson’s To Consider

Michael J Fox Foundation Third Thursdays Webinar 8/20 – Dementia with Pakrinson’s

August 6, 2015

Sign up today for the Michael J Fox Foundation’s upcoming Third Thursday Webinar 8/20 on Dementia with Parkinson’s: What We Know and How We’re Trying to Stop it.

Event Registration.

via Event Registration.

Public Forums for Input on Human Services Needs in Fairfax County | Fair Oaks Parkinson’s Support Group

July 27, 2015

The Fair Oaks Parkinson’s Support group posted this article for upcoming forums in Fairfax County to hear from the public about gaps in human service needs and potential solutions.

Public Forums for Input on Human Services Needs in Fairfax County | Fair Oaks Parkinson’s Support Group.