Public Forums for Input on Human Services Needs in Fairfax County | Fair Oaks Parkinson’s Support Group

The Fair Oaks Parkinson’s Support group posted this article for upcoming forums in Fairfax County to hear from the public about gaps in human service needs and potential solutions.

Public Forums for Input on Human Services Needs in Fairfax County | Fair Oaks Parkinson’s Support Group.

Michael J Fox Foundation Third Thursday Webinar – Why Might Constipation Be a Parkinson’s Symptom?

Interesting seminar tomorrow hosted by the Michael J Fox Foundation about Constipation. If you can’t make tomorrow’s call, webinars are archived online — see the link below.

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Why Might Constipation Be a Parkinson’s Symptom?

Thursday, July 16, 12 to 1 p.m. ET

Event Registration.

Our panelists will discuss constipation and other gastrointestinal difficulties Parkinson’s patients can experience, and why the gut is of interest to researchers. 

Register today.

Q & A with participants will follow the discussion.

Watch previous Third Thursdays Webinars at www.michaeljfox.org/webinars.

Closing of the Fairfax City Parkinson’s Support Group

Karl and I would like to announce the closing of the Parkinson’s support group in Fairfax City. The group met for 13 years to provide support in Fairfax City to those living with Parkinson’s. We plan on continuing sending out occasional informational emails and posting to the blog parkinsonspower.wordpress.com. If you would like to remove yourself from this email listing, please reply and let us know.

We encourage those of you who need support to reach out to the following groups in the Fairfax area. These groups are eager to welcome you!

Fair Oaks
4th Saturday of every month
10:00 am – 12 noon

Sunrise at Fair Oaks
3750 Joseph Siewick Dr, Fairfax VA 22033 

Sign up on their website fairoaksparkinsons.com to receive their newsletter.

Springfield
Springfield Parkinsons Support Group 2nd Monday of each month (except July and August) at 12:15pm
at Prince of Peace Lutheran church 8304 Old Keene Mill Rd, Springfield, VA 22152, room 21.
Please email Ed know if you are coming-for his planning purposes.

Manassas
Email Phil for meeting times and information.

PD Women’s group

http://womenwithparkinsons.com/– Website

Contact Lu for more information.

Parkinson’s Care Partners Support Group

4th Sunday of each month
1:30pm -3:30pm

Fairfax Regional Library is located at 10360 North Street, Fairfax, VA 22030-2415.

Email Sharon for more information.

Parkinson Foundation of the National Capital Area (PFNCA) has a comprehensive listing of support groups in this area.  Their website is www.parkinsonfoundation.org.

If you would like to start a group in your area, the Parkinson Foundation of the National Capital Area has a support group leader meeting planned on July 25th  This would be a great event to meet other group leaders and learn how to build a group.  Fairfax County/Fairfax City has very few PD support groups and needs your help!

PFNCA Support Group Leader meeting to take place July 25th

The Parkinson Foundation of the National Capital Area (PFNCA) will hold a meeting for area support group leaders. For many years, PFNCA periodically convened a group of area support group leaders to share best practices and address challenges faced when leading groups. At the request of many, we are pleased to schedule this meeting to continue with this effort. If you are interested in starting your own support group and becoming a support group leader, please contact Jamie Smith by email at jsmith@parkinsonfoundation.org for more information.

We hope to see you at local Parkinson’s events. Best wishes to you on your journey with Parkinson’s.

Angela and Karl

Awareness + Acceptance = Empowerment

Sheryl’s posting is poignant and insightful. Please give it your consideration.

Awareness + Acceptance = Empowerment.

Angela

2015 list of Parkinson’s disease books

We were recently asked to compile a list of Parkinson’s disease books.  This listing of books is separated into 3 sections:

-Books written by those living with Parkinson’s disease

-Books written for children about Parkinson’s disease

-Books written by medical professionals or allied health professionals about Parkinson’s disease

This list is not an endorsement of the books, merely a list that could be used as a reference for those looking for a book about Parkinson’s.  The list is a combining of Amazon available books, self published titles and newly released titles.

The listing is in a PDF format.

List of Parkinson books 2015

Angela & Karl

Four PD links – resources and fundraisers

Hello Everyone – Here are some PD resources we would like to share with you:

Paul Zimmet (a former support group attendee) recently co-authored this article in Nature regarding centralizing Parkinson’s research information for scientists and patients: http://blogs.nature.com/ofschemesandmemes/2015/02/26/npj-parkinsons-disease-opening-up-access-to-scientists-and-patients-alike

There’s a fantastic radio show online each Saturday at 11am from WBZT in Palm Beach FL called The Parkinson Radio Hour.  Here’s the link to the show: http://www.wbzt.com/onair/the-parkinson-radio-hour-54528/about-the-show-12373868/

Support group member, MaryBeth is walking on April 25th with Team Baron at the Unity Walk in New York City.  If you would like to support MaryBeth, here’s a link to her personal page: http://unitywalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1113790&lis=0&kntae1113790=16DE07DC8A544E12A3F9C5F98A4FB278&supid=318662914

Do you love Pretzels?  There’s a charity started by grandchildren to raise money for Parkinson’s research on behalf of their grandmother.  If you want to purchase pretzels, here’ the website: http://www.pretzelsforparkinsons.org/default.asp